Support Program for Caregivers of Children and Adolescents with Rare Diseases (Neuro-e-Motion I-Care)
A free assistance program for parents offered by the University of Deusto
General objective of the project:
Evaluate the effectiveness of a teleassistance intervention program in improving the quality of life and psychosocial aspects of caregivers of children and adolescents with neuromuscular diseases and Wolf-Hirschhorn Syndrome.
Caregivers (parents and/or tutors) of children and adolescents affected by a neuromuscular disease (muscular dystrophies, myotonic dystrophies: juvenile or congenital myasthenia, among others) or Wolf-Hirschhorn Syndrome.
More information about the project:
First phase of the study: Comprehensive assessment of of the experience of caregiver of children and adolescents with neuromuscular diseases Comprehensive assessment of the experience of caregivers of Wolf-Hirschhorn
Predoctoral grant of Basque Government 2015-2016 (PRE_2015_1_0169).