Teleassistance Intervention – Rare Diseases

General objective of the project:

Apply a teleassistance program to people with rare diseases and/or family and evaluate its effectiveness in improving health-related quality of life.

Type of population: 

  • Children and adolescents affected by neuromuscular diseases
  • Adults with neuromuscular diseases: myasthenia gravis, facioscapulohumeral muscular dystrophy, muscular dystrophy of the waist, Becker muscular dystrophy, family spastic paraparesis, polyneuromiopathy, Charcot Marie Tooth, among others.
  • Family (Neuro-e-motion I-Care Project).

Access to publications about this project here.