Teleassistance Intervention – Rare Diseases
General objective of the project:
Apply a teleassistance program to people with rare diseases and/or family and evaluate its effectiveness in improving health-related quality of life.
Type of population:
- Children and adolescents affected by neuromuscular diseases
- Adults with neuromuscular diseases: myasthenia gravis, facioscapulohumeral muscular dystrophy, muscular dystrophy of the waist, Becker muscular dystrophy, family spastic paraparesis, polyneuromiopathy, Charcot Marie Tooth, among others.
- Family (Neuro-e-motion I-Care Project).