Quality of life and social support: Physical activity program for rare diseases

General objective of the project:

Achieve a greater perceived social support, a higher level of perceived quality of life and lower levels of anxiety and depression through a face-to-face and online physical activity program for people affected by a rare disease.


Neuromuscular diseases: myasthenia gravis, Steinert myotonic dystrophy, waist dystrophy, facioscapulohumeral dystrophy, hereditary neuropathies, congenital myopathies.